February 2011
2 posts
Mary's Family
It’s official…our nonprofit is now incorporated in the United States Virgin Islands! Let the respite days begin….
Rest in Peace, Nick Arundel. Without the Fauquier Times- Democrat our nonprofit would have folded in a year. Mary’s Family owes Mr. Arundel a debt of gratitude. Thank you, Mr Arundel.
October 2010
1 post
RIP
Glenn Gilbert - a fine gentleman who left this earth too soon. God bless his mom Glenda…
July 2010
5 posts
White House Visit
Tomorrow Jeffrey and I will go to the South Lawn of the White House to celebrate the 20th Anniversary of the Americans for Disabilities Act. So proud to be included in this terrific event hosted by President Obama.
If medical neuro residents can’t handle pissed off moms and dads how are they going to handle really tough stuff like dying little girls with Retts or teenage boys with non verbal autism who are having seizures? Jeffrey should be a snap! Med schools need to teach having thick skin, open hearts and minds and disability etiquette. Jeffrey going home and Jeff and I only lost temper with 2...
June 2010
11 posts
Children's Hospital
Sometimes you learn important news a little late…our dear mentor and friend Mary Donnelly, former patient advocate at Children’s, died unexpectedly this past spring. She inspired us, helped us and we used to joke that we named Mary’s Family after her….a wonderful friend RIP
1 tag
http://www.examiner.com/x-22905-DC-Disability-Exami... →
Go to my friend Michael’s articles. He is up to date with all things disability —-
March 2010
5 posts
Thank you Senator Kennedy....
If your child benefits from Special Education, Medicaid, EDCD, civil rights and liberties….you can thank Senator Ted Kennedy. His passing into a place with no sorrow, no pain, is sad for all us left here in a world where there is much sorrow and much pain. Thanks, Uncle Teddy, for steadfastly helping our children who… have special needs, disabilities and medical challenges. God Bless,...
“I discovered early that the hardest thing to overcome is not a physical...”
